Geographic atrophy (GA) is the advanced form of age-related macular degeneration (AMD) and a leading cause of blindness for which there is currently no treatment. The disease, which causes progressive and irreversible vision loss, affects more than 5 million people worldwide, including one million people in the United States.[1],[2]
A recent global Geographic Atrophy Insights Survey (GAINS) of 203 adults with GA found the condition causes a profound emotional burden and loss of independence. Key highlights from the survey include:
• Three out of four people attributed their loss of vision to a natural part of aging prior to diagnosis.
• A majority feel the disease has negatively impacted aspects of everyday life such as the ability to drive, read and travel.
• Nearly 70% of people with GA believe the loss of independence and impact on quality of life due to their vision loss is worse than they expected.
More than 90% of patients wish to be empowered with more information to help them take control of their disease. These findings underscore the urgent need for education to prepare patients and their loved ones for this debilitating disease.
On Wednesday, May 18, Dr. Nancy Holekamp, Director of Retina Services at the Pepose Vision Institute, Missouri will be available to discuss the GAINS survey, including common misconceptions and the emotional burden and loss of independence that can be caused by GA.
. Interview courtesy: Apelllis Pharmaceuticals
NEW SURVEY IS SHEDDING LIGHT ON THE EMOTIONAL BURDEN & IMPACT ON INDEPENDENCE AMONG THOSE WITH A LEADING CAUSE OF BLINDNESS – CALLED GEOGRAPHIC ATROPHY OR G-A. G-A IS THE ADVANCED FORM OF AGE-RELATED MACULAR DEGENERATION OR A-M-D WHICH CAN CAUSE IRREVERSIBLE VISION LOSS.
RESULTS FROM A GLOBAL SURVEY FOUND THAT 7 IN 10 ADULTS WITH G-A BELIEVE THE IMPACT ON THEIR INDEPENDENE AND QUALITY OF LIFE DUE TO THEIR VISUAL DECLINE IS WORSE THAN THEY EXPECTED.
DISCUSS THE SURVEY RESULTS AND THE NEED FOR EDUCATION SURROUNDING THE DISEASE IS DR. NANCY HOLEKAMP (NAN-CEE HOLE-CAMP), DIRECTOR OF RETINA SERVICES AT THE PEPOSE VISION INSTITUTE, MISSOURI.
Dr. Nancy Holekamp, Director of Retina Services at the Pepose Vision Institute, St. Louis, Missouri
Dr. Nancy M. Holekamp is Director of Retina Services at the Pepose Vision Institute in St. Louis. She was previously Professor of Clinical Ophthalmology and Visual Sciences at the Washington University School of Medicine in St. Louis, Missouri. Dr. Holekamp received her undergraduate Bachelor of Arts degree from Wellesley College Summa cum Laude. She received her Medical Degree from the Johns Hopkins School of Medicine Alpha Omega Alpha. Dr. Holekamp completed an internship in internal medicine and a residency in ophthalmology at the Washington University School of Medicine. Her fellowship training in vitreoretinal surgery was with the Retina Consultants in St. Louis.
Dr. Holekamp is actively involved in clinical research, having been principal investigator or sub-investigator in over 35 national clinical trials dealing with age-related macular degeneration, retinal vascular occlusion, and diabetic retinopathy. Her efforts in research have resulted in 80 peer-reviewed publications, 22 book chapters, and more than 120 speaking invitations both nationally and internationally. She is a member of the major subspecialty societies, including the Retina Society and the Macula Society. She acts as a reviewer for all the major ophthalmology journals and as a consultant to numerous ophthalmic pharmaceutical companies. After 6 years on the American Academy of Ophthalmology Ethics Committee, she has developed an interest in medical ethics.
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