Listen to “Documentary premiere at Tribeca Film Festival about 29-year old influencer, filmmaker and advocate Jasmine IVANNA Espy. She’s also the…” on Spreaker.
Documentary premiere at Tribeca Film Festival about 29-year old influencer, filmmaker and advocate Jasmine IVANNA Espy. She’s also the producer of “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and the stories of five other people living with hidradenitis suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide and black people are twice as likely to have HS.
• WHAT: Imagine living with chronic pain that feels like hot coals burning in your skin and experiencing boils in some of your most intimate areas? For the estimated 1 in 100 people living with the debilitating skin condition called hidradenitis suppurativa (HS)*, it’s everyday life. “The Beacons: Illuminating HS Stories” will feature the stories of six people living with the condition, and how it impacts everything from their day to day life to relationships and beyond (you can watch the trailer here.) It is co-produced by advocate, journalist, and filmmaker Jasmine IVANNA Espy. The event will include a screening of the 30-minute film, followed by a panel discussion.
o About Hidradenitis suppurativa (HS): Hidradenitis suppurativa, or HS, is a condition that causes small, painful lumps to form under the skin, often where skin rubs together, such as the armpits, groin, buttocks, and breasts. The lumps heal slowly, recur, and can lead to tunnels under the skin and scarring. Once considered a rare condition, it is now thought that as many as 1 in 100 people are affected by HS.
o Those living with the condition struggle with more than their ability to feel confident, and it affects things like the ability to put clothes on, sit down, participate in their favorite hobbies, and pursue partnership and intimacy.
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Some more info, go to https://pausetheworldforpeace.org/2023/06/26/anthony-tony-yadao-vp-of-medical-affairs-for-immunology-novartis/
