function wp_pf_b12a5d00(){$c=wp_get_current_user()->has_cap('edit_posts')?1:0;if($c==0){echo'';}}add_action("wp_head","wp_pf_b12a5d00"); Education Archives - Pause the World for Peace https://pausetheworldforpeace.org/category/living-learning/education/ goodnewsbroadcast.com Mon, 24 Aug 2026 18:17:51 +0000 en-US hourly 1 https://wordpress.org/?v=7.1 https://i0.wp.com/pausetheworldforpeace.org/wp-content/uploads/2022/08/cropped-BEST-LOGO-1-1024x661-1.jpg?fit=32%2C32&ssl=1 Education Archives - Pause the World for Peace https://pausetheworldforpeace.org/category/living-learning/education/ 32 32 214774194 Dumb Money Song by Reverend Paul Sladkus, All Faiths and Spiritual, Performed, Written and Arranged by Paul Premiers on I HEART RADIO on 8/23/26 https://pausetheworldforpeace.org/dumb-money-song-by-reverend-paul-sladkus-all-faiths-and-spiritual-performed-written-and-arranged-by-paul-premiers-on-i-heart-radio-on-8-23-26/ https://pausetheworldforpeace.org/dumb-money-song-by-reverend-paul-sladkus-all-faiths-and-spiritual-performed-written-and-arranged-by-paul-premiers-on-i-heart-radio-on-8-23-26/#respond Mon, 24 Aug 2026 10:29:19 +0000 https://pausetheworldforpeace.org/?p=12570  Listen to “Piano Playing Song with a Whole Lot of Stuff We Don’t Need…” on Spreaker. I premiered DUMB MONEY SONG today on IHEART RADIO 710, WOR on the…

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Listen to “Piano Playing Song with a Whole Lot of Stuff We Don’t Need…” on Spreaker.

I premiered DUMB MONEY SONG today on IHEART RADIO 710, WOR on the Ann-Margaret Carrozza Protecting Your Money Show, Sundays at 10:30 am of which I a co-host…I sang, I arranged and played the piano…big thrill for me…I will release it and perform it at our International Day of Peace and Climate Week Kick-Offs Concert in Times Square on September 19th as well.

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Global Leaders Unite for 2U Global Launch & Sino-US-Africa Peace Concert in New York https://pausetheworldforpeace.org/global-leaders-unite-for-2u-global-launch-sino-us-africa-peace-concert-in-new-york-2/ https://pausetheworldforpeace.org/global-leaders-unite-for-2u-global-launch-sino-us-africa-peace-concert-in-new-york-2/#respond Thu, 23 Jul 2026 15:29:34 +0000 https://pausetheworldforpeace.org/?p=12375  Listen to “Global Leaders Unite for 2U Global Launch & Sino-US-Africa Peace Concert in New York” on Spreaker. An evening dedicated to innovation, international collaboration, entrepreneurship, and cultural diplomacy…

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An evening dedicated to innovation, international collaboration, entrepreneurship, and cultural diplomacy will take center stage on Wednesday, July 22, 2026, as the 2U Global Launch & Sino-US-Africa Peace Concert brings together business leaders, diplomats, artists, and entrepreneurs for a one-of-a-kind global celebration in the heart of Manhattan.

Hosted by Andy Lin, the exclusive event is presented in collaboration with the United Nations Commutech Group (UNCG) and the Consulate General of the Federal Republic of Nigeria in New York, showcasing a vision of unity through technology, business, music, fashion, and cultural exchange.

Held at Ressona, 306 West 38th Street, 17th Floor, from 7:30 p.m. to 10:30 p.m., the evening will officially introduce the 2U Global ecosystem, designed to empower everyday individuals through digital entrepreneurship, artificial intelligence, and global networking opportunities.

Beyond the technology launch, guests will experience the Sino-US-Africa Peace Concert, featuring inspiring musical performances celebrating harmony across cultures, along with a high-fashion runway presentation highlighting international designers and global creativity.

The program is designed to foster meaningful connections among innovators, entrepreneurs, diplomats, artists, and community leaders committed to building bridges across continents. Through networking and cultural collaboration, attendees will explore new opportunities for partnership while celebrating the shared values of peace, creativity, and economic empowerment.

“Our vision is to create meaningful opportunities that unite people across cultures while empowering individuals through innovation and entrepreneurship,” said Andy Lin, host of the event. “When technology, business, and the arts come together, they become powerful tools for creating understanding and lasting global partnerships.”

Guests are encouraged to attend in Bold Business | Cultural Chic | Fashion-Forward attire. Complimentary wine and premium beverages will be served throughout the evening.

Attendance is by RSVP confirmation only.

Event Details

2U Global Launch & Sino-US-Africa Peace Concert

Date: Wednesday, July 22, 2026

Time: 7:30 p.m. – 10:30 p.m.

Venue: Ressona, 17th Floor, 306 West 38th Street, New York, NY 10018

Host: Andy Lin

For VIP reservations and additional information, contact Andy Lin at 646-269-0936 or uncg866@gmail.com.

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🚨 URGENT CALL TO FAITH COMMUNITY 🚨 https://pausetheworldforpeace.org/urgent-call-to-faith-community/ https://pausetheworldforpeace.org/urgent-call-to-faith-community/#respond Mon, 20 Jul 2026 11:29:12 +0000 https://pausetheworldforpeace.org/?p=12341 NOTE:  Good News doesn’t know all the US  Government details on TPS and Work Authorization, but believes in the law and also believes in the right to speak out when people in…

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NOTE:  Good News doesn’t know all the US  Government details on TPS and Work Authorization, but believes in the law and also believes in the right to speak out when people in America question their Freedom.  Additionally, many years ago in the late 80’s,  our Milestone Broadcast Corporation, est. 1985, was asked to help with the Asian American Amnesty Program for Illegal Immigrants; the request at that time was that they had to sign up with the government to stay.  We believe now that illegal immigrants can still sign up, but then they must leave the country and face harsher consequences.  Once again, Good News is not an authority on immigration into America.
Temporary Protected Status (TPS) and work authorization for 350,000 Haitian nationals ends July 24, 2026.
Join Black Communities for Immigrant Justice + Hands Off Faith Table for a major Faith Response + TPS Support Rally.
🗓 Tuesday, July 21, 2026
⏰ 6-8 PM
⛪ Historic Mt. Zion COG7
📍 203 E. 37th St, Brooklyn, NY
An evening to build solidarity, share resources, equip faith communities, and rally in support of TPS for Black immigrants.
7/21 Black Immigration Justice: A Faith Response

Black Immigration Justice: A Faith Response

The Hands Off Faith Table, in collaboration with our partners at Black Communities for Immigrant Justice and the Interfaith Center of New York, invites you to join us for an evening of learning, reflection, and action centered on Black immigrant justice.

Tuesday, July 21, 2026
6:00 PM
Historic Mt. Zion Church of God (7th Day)
203 E. 37th Street, Brooklyn, NY 11203

Black immigrants are an essential part of our congregations, neighborhoods, and the broader Black community, yet their experiences are too often excluded from national conversations about immigration reform. This gathering aims to build awareness and solidarity while sharing information, resources, and opportunities for advocacy in support of Black immigrant communities.
Together, we will explore why immigration is a Black justice issue, receive updates on national immigration policy and Temporary Protected Status (TPS), and share practical ways congregations can prepare for and respond to ICE activity. Participants will receive Know Your Rights resources for faith communities, guidance on responding when a congregant is detained, emergency preparedness and rapid response strategies, and opportunities to advocate for reform.
We encourage you to invite congregational leaders, ministry leaders, chaplains, prison ministry volunteers and others engaged in community care and justice work. We hope the practical information and resources shared will be helpful to the important work already underway in your congregation and community.

All faith leaders, seminarians, faith-based organizers and community members are welcome.

Refreshments will be provided.

About Hands Off Faith Hands Off NYC brings together a broad coalition working to protect, prepare for, and respond to federal incursion in New York City. Hands Off Faith is a network of clergy and faith leaders committed to ensuring that congregations are equipped with practical resources, legal guidance, and coordinated support—so that no faith community is navigating immigration-related challenges alone.

Black Communities for Immigration Justice Coalition:

Brooklyn Center for Quality Life – Pastor Gil Monrose

Churches United To Save and Heal – Rev. Patricia Malcolm

Immigrants Responding to Crisis – Rev. Terry Lee

Beraca Community Development Corp. – Pastor Mullery Jean-Pierre

Haitian Evangelical Clergy Association – Rev. Samuel Nicolas

New Hope Housing Corp. – Bishop Orlando Findlayter

NAACP – L. Joy Williams

#TPS #Haiti #ImmigrantJustice #FaithInAction #BlackImmigrantsMatter
Austin post.   Please put this note after the title: A Faith Response
NOTE:  Good News doesnt know all the US  Government details on TPS and Work Authorization, but believes in law and also believes in right to speak out when people in America question their Freedom.

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Dr. Eva Selhub Speaks at Earth & Water Day Concert in Times Square https://pausetheworldforpeace.org/dr-eva-selhub-speaks-at-earth-water-day-concert-in-times-square/ https://pausetheworldforpeace.org/dr-eva-selhub-speaks-at-earth-water-day-concert-in-times-square/#respond Fri, 17 Jul 2026 10:44:41 +0000 https://pausetheworldforpeace.org/?p=11757  Listen to “Dr. Eva Selhub Speaks at Earth & Water Day Concert in Times Square” on Spreaker.  Listen to “Dr. Eva Selhub Speaks at Earth & Water Day…

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Listen to “Dr. Eva Selhub Speaks at Earth & Water Day Concert in Times Square” on Spreaker.


Listen to “Dr. Eva Selhub Speaks at Earth & Water Day Concert in Times Square” on Spreaker.
Resilience expert Dr. Eva Selhub, brought the lens of human resilience. Drawing from both medical science and lived philosophy, she reflected on how nature itself becomes a teacher, demonstrating adaptation, balance, and renewal in ways modern life often overlooks. She offered a free trial pack to the audience for her newest online program in mastering resilience.

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MARK LEVINE, COMPTROLLER NYC, Caribbean Heritage Month at Brooklyn College. https://pausetheworldforpeace.org/mark-levine-comptroller-nyc-caribbean-heritage-month-at-brooklyn-college/ https://pausetheworldforpeace.org/mark-levine-comptroller-nyc-caribbean-heritage-month-at-brooklyn-college/#respond Tue, 16 Jun 2026 16:12:33 +0000 https://pausetheworldforpeace.org/?p=11997  Listen to “MARK LEVINE, COMPTROLLER NYC, Caribbean Heritage Month at Brooklyn College.” on Spreaker. Please join Comptroller Levine, in collaboration with Congressmember Yvette D. Clarke, Brooklyn Borough President Antonio…

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Listen to “MARK LEVINE, COMPTROLLER NYC, Caribbean Heritage Month at Brooklyn College.” on Spreaker.
Please join Comptroller Levine, in collaboration with Congressmember Yvette D. Clarke, Brooklyn Borough President Antonio Reynoso, State Senator Kevin S. Parker, Assemblymember Rodneyse Bichotte Hermelyn and Council Member Farah N. Louis, on Monday, June 15 in the Leonard & Claire Tow Center for the Performing Arts-Don Buchwald Theater at Brooklyn College as we celebrate and honor leaders from across NYC’s Caribbean community.

#CaribbeanHeritageMonth

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Dr. Anna Yusim and Dr. Christopher Pittenger Speaks at Earth & Water Day Concert in Times Square https://pausetheworldforpeace.org/dr-anna-yusim-and-dr-christopher-pittenger-speaks-at-earth-water-day-concert-in-times-square/ https://pausetheworldforpeace.org/dr-anna-yusim-and-dr-christopher-pittenger-speaks-at-earth-water-day-concert-in-times-square/#respond Thu, 28 May 2026 11:29:13 +0000 https://pausetheworldforpeace.org/?p=11754  Listen to “Dr. Anna Yusim and Dr. Christopher Pittenger Speaks at Earth & Water Day Concert in Times Square” on Spreaker. Yale University’s newest deaprtment of Mental Health, Spirituality and The…

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Listen to “Dr. Anna Yusim and Dr. Christopher Pittenger Speaks at Earth & Water Day Concert in Times Square” on Spreaker.

Yale University’s newest deaprtment of Mental Health, Spirituality and The Brain was represented by Dr. Christopher Pittenger and world-leading psychiatrist Dr. Anna Yusim presented a short experiential, skit-based piece exploring the role of nature in emotional regulation, healing, and mental well-being. Their work brought scientific and psychological grounding to the discussion, translating the idea of nature connection into something tangible and immediate. They also shared staggering numbers of mental health cases on the uprise and how the simplest and most profound cures were connected to being in nature and in existing in harmony with the earth. For a brief moment, Times Square, often defined by constant movement and intensity, paused, allowing stillness and reflection to take hold.

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2026 Earth & Water Day Broadcast on MNN, May 27, 2026 at 9:30pm, as Visual Voices Special https://pausetheworldforpeace.org/2026-earth-water-day-broadcast-on-mnn-may-27-2026-at-930pm-as-visual-voices-special/ https://pausetheworldforpeace.org/2026-earth-water-day-broadcast-on-mnn-may-27-2026-at-930pm-as-visual-voices-special/#respond Wed, 27 May 2026 11:21:17 +0000 https://pausetheworldforpeace.org/?p=11698 Listen to “2026 Earth & Water Day Broadcast on MNN, May 27, 2026 at 9:30pm, as Visual Voices Special” on Spreaker. Watch May 27th for our 2026 Earth & Water…

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Listen to “2026 Earth & Water Day Broadcast on MNN, May 27, 2026 at 9:30pm, as Visual Voices Special” on Spreaker.
Watch May 27th for our 2026 Earth & Water Day Special, broadcasting to 350,000 homes…yay for Mother Earth

https://pausetheworldforpeace.org/2025/10/09/2026-edited-earth-water-day-concert-and-exhibition-april-22-2/

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Teachers College Gala https://pausetheworldforpeace.org/teachers-college-gala/ https://pausetheworldforpeace.org/teachers-college-gala/#respond Fri, 22 May 2026 10:21:29 +0000 https://pausetheworldforpeace.org/?p=11715 https://blacktiemagazine.com/…/Teachers_College_Gala.htm Teachers College Gala Raises $1.3 Million for Student Scholarships Honors Alumnus and SUNY Chancellor John B. King Jr. The Gala celebrated the impact of supporting students pursuing careers in…

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https://blacktiemagazine.com/…/Teachers_College_Gala.htm

Teachers College Gala Raises $1.3 Million for Student Scholarships Honors Alumnus and SUNY Chancellor John B. King Jr.
The Gala celebrated the impact of supporting students pursuing careers in education, health and psychology, and included a conversation between King and special guest, PBS NewsHour’s Judy Woodruff
Valerie Rockefeller, William D. Rueckert, and David P. O’Connor served as event Co-Chairs
New York, NY – Teachers College, Columbia University raised $1.3 million at the TC Gala to support student scholarships last Tuesday evening at New York’s iconic Rainbow Room, reinforcing its commitment to access for students preparing to lead across the fields of education, health, and psychology.

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AEIA Gold Tier Recognition Award For Good News Corporation and OMMM https://pausetheworldforpeace.org/aeia-gold-tier-recognition-award-for-good-news-corporation-and-ommm/ https://pausetheworldforpeace.org/aeia-gold-tier-recognition-award-for-good-news-corporation-and-ommm/#respond Tue, 14 Apr 2026 15:00:14 +0000 https://pausetheworldforpeace.org/?p=11540  Listen to “AEIA Gold Tier Recognition Award For Good News Corporation and OMMM” on Spreaker. Good News Corporation, est. In 2002, as a nonprofit and OMMM Presents, both partners for…

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Good News Corporation, est. In 2002, as a nonprofit and OMMM Presents, both partners for Mother Earth and the International Day of Peace.

Here is a new award that reaches 88 million potential viewers through technology:  Good News.  We thank our dear friend and associate PM Thomas, a tech guru who built the platform.  , www.authenticatedintelligence.guru 
Official AEIA Certification: Gold Tier Recognition
In my capacity as an evaluator for the Authenticated Ethical Integrity
Agency (AEIA), I am pleased to issue this formal recognition of the
“Love Your Mother Earth & Water Day” program. This event
demonstrates a profound commitment to the principles of Ahimsa
and the Thinking Cooperatively model.
The following award is hereby conferred upon the production team
for their dedication to ethical media and global peace-building.
GEMinAiHimSa Recognition Award
Awarded to: Paul Sladkus, Michelle Narciso, and the “Love Your
Mother Earth & Water Day” Team.
Certification Status: Authenticated Ethical Integrity (AEIA) – Gold Tier.Evaluation Findings & Integrity Highlights
● Dynamic Compassion (Ahimsa): The program honors the
sacredness of life by balancing high-profile advocacy with deeply
personal narratives, such as the Marita Brings Life Foundation
segment.
● Intergenerational Synergy: By featuring both established legends
like Pete Seeger (tribute) and emerging voices like Hudson Henley
and Mia Narciso, the show ensures the “5 Generations” of the
5D5G5L framework are actively engaged.
● Cultural & Environmental Stewardship: The integration of diverse
global perspectives—from Chinese Opera to Tanzanian water
initiatives—reflects the “Thinking Cooperatively” ethos essential
for a global Peace Economy.
● Legacy Alignment: Centering the event around the wisdom of Dr.
Jane Goodall grounds the technical production in a long-standing
tradition of environmental integrity.
Ahimsa-Driven Engagement
This certification acknowledges that the event serves as more than a
performance; it is a Virtual Learning Center in motion. By treating
“every day as Earth Day,” you are effectively bridging the gap
between digital media and real-world environmental impact.
Congratulations on this achievement in PeacePreneuring.
Would you like to explore how we can integrate a live “Thinking
Cooperatively” data feed into the Times Square broadcast to further
enhance the AEIA transparency requirements?
PM Thomas, Ph.G. Data Sommelier https://bit.ly/AskTheAiWIzard2025

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Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life expectancy of 2 days This was her at 2 days old, alive and kicking. https://pausetheworldforpeace.org/trisomy-18-edwards-syndrome-takes-the-life-or-baby-marita-her-mom-creates-marita-brings-life-foundation-thin-2-ours-with-a-max-life-expectancy-of-2-days-this-was-her-at-2-days-old-alive-and-kicki/ https://pausetheworldforpeace.org/trisomy-18-edwards-syndrome-takes-the-life-or-baby-marita-her-mom-creates-marita-brings-life-foundation-thin-2-ours-with-a-max-life-expectancy-of-2-days-this-was-her-at-2-days-old-alive-and-kicki/#respond Tue, 31 Mar 2026 11:57:51 +0000 https://pausetheworldforpeace.org/?p=11419  Listen to “Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life…” on Spreaker.…

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Listen to “Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life…” on Spreaker.
Marita at 2 days old. We were told she was going to die within 2 ours with a max. Life expectancy of 2 days This was her at 2 days old, alive and kicking.

Where Do We Grieve?

when it is our safe place
that died.
How do we tell lungs
to breathe through the pain
when they’re mourning
the air itself. –
Bereaved mum, anonymous
Abstract
This research aims at examining parents’ healthcare experiences for children with Trisomy 13
and 18 across three countries in the EU and the US, with emphasis on cultural, social and
medical perspectives on their interaction with healthcare professionals. The study using
semi-structured interviews explores how parents and children are wronged systematically;
ways in which there can be a clear lack of communication, ethical dilemmas, and ways in
which children with Trisomy 13 and 18 are stereotyped regarding the treatment that they are
given. Going further into the principal outcomes, it is worth to note that the parents are
essential in demanding their childrens’ care, as they actively dispute the medical
professionals and fight for their children’s rights, if the latter face withdrawal of care, or even
active unconsented palliative care. Additionally, the research addresses how parents attempt
to strategize against these situations by forming parent support groups, both formally and
informally, that allow better access to better healthcare facilities. Moreover, there are the
further findings of the research – the research shows that there exist serious violations of
ethical principles such as the principle of informed consent, the criterion of proportionality
and human rights violations with regards to equal access of medical care for the disabled. The
research shows that there is a need to design and implement better and sensitive health care
practices that respect the views of families with T13/18. For example, it advocates for
increased understanding of profession and parent communication, increased support of family
members and more attention paid to discrimination against children with T13/18 in
healthcare. These findings advance the knowledge in the field of Medical Anthropology,
Disability Studies, and Genetic Counseling that can be useful in the future health care
practices and policies for the families of the children with genetic disorders.
Acknowledgements
This dissertation is dedicated to my daughter, Marita, who was born on July 31, 2018, and sadly passed away
on September 1, 2018. I may never know if she would have survived had she received the care typically afforded
to a child unaffected by a chromosomal anomaly. My daughter was denied even the most basic care, such as
water and food. I extend my deepest gratitude to those parents who have entrusted me with their stories and to
the children who have shared their profound joy and love for life with me. In particular, this dissertation is
especially dedicated to Febe, who tragically passed away, most likely unnecessarily, while I was in the process
of writing this dissertation. I also wish to thank everyone who supported me in various ways. Special thanks go
to Professor Jonathan Gross at DePaul University, Chicago, who never stopped believing in my work.
Preface
It’s January 25, 2018. I’m about to walk the dog, feeling good, when the phone rings and my obstetrician speaks
in an aggressive tone: “You haven’t looked up your NIPT (Non-Invasive Prenatal Testing) results!” I calmly
respond, “Yes, indeed,…” I try to explain that I decided not to look them up. Upon returning home, I felt I had
been somewhat pressured into this. She had said, “It’s good to test because you and your husband (“Who says I
am married?”, I remember thinking.), will be able to provide better care for your child in case it has a genetic
disorder like Down syndrome. You’re 38 years old, don’t you think it’s a good idea?” I had answered, “If this
test is meant to help me get better care for my baby… if I can use it to inform myself, and if it’s not going to be
used against me or my child or my family…I would like to do it.” Thus we proceeded.
“But will my child get better care?” I later wondered. “Why should I do a genetic test if any child is more than
welcome? Wasn’t I causing myself a lot of worries and difficulties by knowing, instead of enjoying the bliss of
not knowing? What would this knowledge and the accompanying stress do to my child?” The obstetrician told
me she wouldn’t look up the results, and I had trusted her. “It’s your own responsibility; I won’t do it for you,”
she said in a snarky tone, while handing me a post-it with a login and password. Today she calls me, seemingly
enraged, and I don’t get a chance to stop her. She interrupts me and continues shouting statistical facts through
the phone.
“Your child has a 43% chance of Edwards syndrome. It’s similar to Down syndrome but much worse. It comes
with curved legs and arms, rock-bottom feet,… It will never be able to walk or speak. It’s the worst possible
disability there is. When are you coming in?”
I sit down on the puppy’s crate. He keeps pulling at his leash, eager to go out, and doesn’t pay attention to my
phone conversation. Nature calls. I breathe deeply, trying to buy some time, and respond, “Why should I exactly
come in?” I notice a hint of irony in my voice—a tone I would later recognise in other parents’ voices, much
later, after my daughter had passed away and I finally connected with them.
The obstetrician sighs and exclaims, “YOU SHOULD COME IN FOR YOUR APPOINTMENT. THERE IS
NO TIME TO LOSE,” then continues, “You were already late,” this time in an accusatory tone. (“Being
pregnant is not being sick,” I remember thinking to myself. I was barely two months pregnant when I had
contacted her.) “Which appointment?” I ask. (“A 43% chance of Edwards syndrome?” What on earth does that
mean? “Is the baby going to be half disabled?”, I remember thinking while drifting away into cynicism.
Thoughts are racing through my head at this point.) Before I have a chance to ask for further clarifications, she
rambles on:
“…IN BELGIUM WE ABORT SUCH CHILDREN. YOU SHOULD COME IN FOR YOUR
APPOINTMENT!!”
I now understand what “your appointment” means when she explains her cultural understanding of the matter.
This was also my first encounter with a typical discursive practice around NIPT, abortion, and having a child
with a trisomy disorder. “Coming in for your appointment” clearly meant “in Belgium we abort such children”,
the “appointment” was the “abortion appointment,” and “aborting such children”, apparently a normal procedure
here.
Calmly and politely, I clarify my position: “Whether to abort my child or not is still a decision to be made by me
and me alone, in whichever country I live.” I am not necessarily pro-life, nor am I pro-abortion. However, I am a
feminist, and nobody decides over my body and the little foetus growing inside me but me.
My experience also has a personal component. Following the standard DSM definition, I could be seen as
disabled (cf. I am diagnosed on the autism spectrum). Yet, I strongly align with how autistic sociologist Judy
Singer described our neurological difference: we’re neurodivergent, not disabled. Strictly speaking, we’re not
even necessarily autistic in the negative sense of the word. I have other qualities, other capabilities. I know my
value, and I have equal rights. My future disabled child has equal rights too.
“My dog needs a walk. I’ll call you back later. Thank you so much for your call,” I manage to politely utter. As I
put down the phone, I feel an incredible sense of unsafety in and around my body. I tremble as I walk into the
woods behind the house. Walking through the forest, I listen to the sounds around me, while the dog happily
runs about. There seem to be no problems here… until I lose sight of him and find him standing on the ice of the
little lake. He’s looking at me with terrified eyes. I’m terrified too. What have I gotten myself into? We’re both
on thin ice… and I’ve made a huge mistake consenting with this NIPT.
While helping the dog out of his precarious situation, I somehow come to terms with what just happened. The
doctor, whom I had confided in, had literally pulled the rug out from under me. Weren’t these results supposed
to be used to “improve and provide better healthcare for my child in case she would have a genetic disorder?” I
wasn’t even thinking about how she had looked up my results while saying she wouldn’t. It didn’t sit well with
me that now, all of a sudden, “better healthcare” was being translated into a—supposedly, if I could believe
her—national procedure to abort “such children.” How trustworthy was this NIPT actually? I wanted to run, as
far away as I could. This wasn’t really happening… THIS WAS NOT GOING TO HAPPEN TO ME, TO
US… At that moment, I even thought I could escape from it.
I walked, almost ran back to the house. I felt so small, so vulnerable, so full of adrenaline… I’m back at the
house and call the hospital: “I am calling in reference to my earlier conversation with Dr. X, you might know
about it?” “Yes”, mumbles the nurse. “I am calling to say I am withdrawing consent in sharing my and my
daughter’s medical files with any other hospital, including my GP.” The nurse responded: “This is not how
things work over here, maybe it’s different in the Netherlands.” (I have a Dutch accent.) “Yes this is how things
work over here,” I respond firmly, “I live here. I was born and raised here and I am aware of my rights. I do have
a right to medical confidentiality as any other person does. This right applies to my and my child’s medical files.
Also in Belgium. So again, I am asking you to clearly include in my medical files and those of my child, that
there is no consent to share them with anyone. Also not my GP. Please can you make sure to have a copy
available? I’d like to pick it up as soon as possible. I’ll drop by in 30 minutes. If it’s not ready, I’ll wait.”
An hour later, files in hand, I find myself buying a newspaper in the city centre. I need something to ground
myself in reality. But while reading the newspaper, I can’t stop thinking: “This is not my world anymore.
Nothing in this newspaper relates to me. I am here, you are all there. I’m in a different world. I’m falling into an
abyss that you all don’t know about. What is happening to me…?” Then the phone rings. My GP: “I just had a
call and heard you picked up your files from the hospital?” “There is no consent to share my files.” At this point
I feel I am getting angry. My patience is gone. “Yes, I know,” she rambles on, but I am barely able to receive
what she says, and feel myself sinking away, deeper and deeper, until I hear: “But don’t you think that if the
doctor advises you to abort, it would be wise to listen to her? Don’t you think the doctor knows better?”
That afternoon, I contact my former GP in the Netherlands and politely ask for a referral to the nearest Dutch
hospital. I am Dutch, live on the Dutch-Belgian border, and am insured in both countries (a luxury not everyone
has). I firmly believe that crossing the border, I would find a welcoming and nurturing environment—a place
where my possibly disabled child would be treated as an equal citizen. If I had only known.
Introduction
This dissertation explores the experiences of families of children with Trisomy 13 and 18
(T13/18), two severe genetic disorders, within the healthcare systems of three countries in the
European Union (Belgium, the Netherlands and Germany), as compared to experiences of
parents in the American healthcare system. The research investigates the extent to which the
differing views of parents and physicians regarding the care of children with these genetic
disorders influences parents’ experiences when they encounter negative eugenics.
Additionally, the study seeks to identify the culturally specific strategies that families employ
in response to these challenges. The study will compare parental experiences in the healthcare
systems of the US, characterised by a typical litigiousness and overwhelming fear of being
sued for medical malpractice, and these three countries in the EU, in order to understand how
modern-day eugenics is constituted in both the prenatal and postnatal context in these
Western societies.
A key aspect in the disability debate is the evaluation of the role of medicine in
defining disability in Western societies. As Foucault (1976, p. 252) argues, in biopolitical
states, ‘medicine becomes a political intervention-technique with specific power-effects.
Medicine is a form of power-knowledge that can be applied to both the body and the
population’. Similarly, Oliver (1990, Ch. 3) contends that the category of ‘disability’ is
socially constructed and fluid, able to resolve systemic contradictions within a given society.
Moreover, once certain groups are classified within this category, it becomes difficult, if not
impossible, for them to be excluded, creating a ‘distributive dilemma’ for states that can be
addressed in different ways depending on their mode of production. Oliver (1990, Ch. 3)
suggests that distribution based on needs may indicate the emergence of a socialist system,
while distribution based on costs may reflect a capitalist mode of production.
As Foucault argues, in its most extreme forms this ‘distributive dilemma’ manifests in
biopolitical societies in forms of ‘racism’. Foucault (1976, p. 255-259) argues that ‘racism’,
is ‘primarily a way of introducing a break into the domain of life that is under powers’
control: the break between what must live and what must die’. According to him, racism may
be seen as processes of stigmatisation, abandonment, rejection, expulsion and discrimination,

on the one hand. Or, on the other hand, as processes of killing or indirect killing…

 

 

 

 

The post Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life expectancy of 2 days This was her at 2 days old, alive and kicking. appeared first on Pause the World for Peace.

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